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Written by Bryon McDowell
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Saturday, 12 November 2011 |
Please Join Us For The Annual Tennessee PKU Foundation Meeting Saturday, December 10, 2011 10:00 a.m. – 2:00 p.m. FiftyForward Martin Center (great new location) 960 Heritage Way - Brentwood, TN View MapLunch will be provided for all ● Presentations ● Food ● Arts & Crafts Area for Kids ● Door Prizes ● Much More
For questions, you may contact Rickie Hall via e-mail at
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or Sherry Burney either at
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(e-mail) or at 423.580.3239 (phone) |
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Last Updated ( Saturday, 12 November 2011 )
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Written by Bryon McDowell
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Monday, 26 September 2011 |
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On Saturday, September 24, the PKU community lost one of its greatest heroes -- Dr. Richard Koch. Dr. Koch dedicated his entire career to identify, treat and help find a cure for PKU. For more than fifty years, his work was at the forefront of PKU treatment and research. In honor of Dr. Koch’s extraordinary contributions to PKU, the National PKU Alliance has created a tribute to Dr. Koch at www.pkuheroes.org. We invite you to visit the page and leave your comments on what Dr. Koch’s work meant to you by October 3. We will be taking all of the comments we receive and creating a Remembrance Book for Dick’s wife, Jean, and their family. We hope this book will offer comfort to his family as well as pay tribute to the rich legacy that Dr. Koch leaves behind in the PKU community. He has truly changed all of our lives. |
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Last Updated ( Monday, 26 September 2011 )
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Knoxville PKU Cooking Workshop |
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Written by Bryon McDowell
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Monday, 26 September 2011 |
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Another Great Success
BioMarin sponsored a PKU Cooking Workshop on Saturday, September 17, 2011 at the new UT Culinary Arts Institute on Neyland Drive in Knoxville. Designed for the culinary program, the foodservice equipment provided a place for our families to cook together in a commercial kitchen! Bridget Reineking, MS, RD, CD of Medical College of Wisconsin Children’s Hospital spoke about nutrition and medical therapy for PKU. The presentation was interactive with lots of great questions and issues from the audience particularly on reasons why PKU patients need to drink their formulas and search out nutrient-dense foods. Erica Stelten spoke about Kuvan and briefly about the new phe meter which is still in production, but will not be out as soon as thought originally. Following was an excellent low phe cooking demonstration by Chef Jason Wyrick from Phoenix, Arizona. Chef Jason helped everyone cook in groups with new recipes for scrumptious “meatballs” and “sloppy joes” among some wonderful fruit and vegetable dishes including sweet potato fries….yum! Cooking with new fresh herbs really made the food very tasty and gave everyone some new ideas. We were then able to eat our cooking from the various recipes. It was such a great learning opportunity for all of us and it allowed more families the opportunity to build our PKU community. |
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Last Updated ( Monday, 26 September 2011 )
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